MRC Notes
This series is based on notes that I took when I attended the Medical Research Council (MRC) HCV Conference in Ottawa on January 15 &16, 1999. While every attempt has been made to maintain accuracy, you must keep in mind that these are only my personal notes.
Darlene Morrow
Report from Breakout Groups- Quality of Life
Where: quality of life should be incorporated into all patient based in research where appropriate.
How: development of new and better quality of life instruments.
What: Quality of Life
i) education is very important in the patients view of quality of life
ii) labeling is important in QOL
iii) social contacts for support
iv) the role of intervention morbid conditions
Socio-economic
No research has been done here. We first need to know how prevalent the disease is. How many days of work are missed, et cetera.
We need to study the stigma associated with different minority groups.
The assessment for disability for HCV needs to be addressed. A significant percentage of those infected with HCV are disabled.