HepCBC.bull April 1998

Bunko Squad - Quack, Quack??

From the WellnessWeb The Patient's Network

Quackery

Quacks are people who sell unproven remedies, once known as "snake oil" salesman who traveled from town to town making amazing claims about "fabulous" products. Sometimes only the wallet is at stake, but quackery can also interfere with proven remedies.

A Government study found that 60 percent of victims of health-care fraud are older people with chronic illnesses and pain, who are often desperate for anything that can offer hope.

Anti-aging potions are a favorite quack product. Think twice about claims about ways to reverse aging, wrinkles, and prevent or cure baldness. Arthritis remedies are especially easy to fall for because symptoms tend to come and go making it seem like the product is working. There are few enough effective treatments for cancer, but treatments that have no proven value, or body of evidence to support them can cause patients to lose time and miss opportunities to use effective therapies.

Don't believe ads or other information in newspapers, magazines, radio, TV, or the Internet without questioning the source and double checking with a second opinion or testimonial from someone you trust. Be especially skeptical of claims of quick or painless cures, "secret" formulas, and claims made without supporting evidence or that sound to too good to be true.

Quackery...The Billion Dollar Miracle Business Courtesy of the U.S. Department of Health and Human Services.

Americans spend billions of dollars on products that do nothing for us - and may even harm us. And we'll do it for the same reason people have done it since ancient times ... we want to believe in miracles. We want to find simple solutions and shortcuts to better health.

It's hard to resist. All of us, at one time or another, have seen or heard about a product - a new and exotic pill, a device, or potion - that we're told can easily solve our most vexing problem. We can eat all we want and still lose weight, grow taller, or build a bigger bustline. We can overcome baldness, stop aging, cure arthritis, and even cancer.

It sounds too good to be true - and it is. But we're tempted to try the product in spite of all we know about modern medical science - or perhaps because of it. After all, many treatments we take for granted today were once considered miracles.

SEPARATING FACTS FROM FANTASY

Just what is quackery? Simply put, quackery is the promotion of a medical remedy that doesn't work or hasn't been proven to work. In modern times, quackery is known as health fraud. But call it quackery or call it health fraud, the result is the same - unfulfilled wishes, wasted dollars, and endangered health.

Often quack products are fairly easy to spot, like the magic pills that keep you young forever. But sometimes the products are vaguely based on some medical report that you may even have heard about in the news.

In general, when looking over ads for medicines and medical devices, watc= h out for those that seem to promise too much too easily. And investigate, before you participate.

THE HIGH PRICE OF HEALTH FRAUD

Quack cures rob us of more than money. They can steal health away or even take lives. Quacks may lure the seriously and often desperately ill, such as people suffering from arthritis and cancer, into buying a bogus cure. When people try quack remedies instead of getting effective medical help, their illnesses progress, sometimes beyond the treatable stage.

TODAY'S TARGETS FOR QUACK ATTACKS

Quacks have always been quick to exploit current thinking. The snake-oil salesmen a few generations back carried an array of "natural" remedies. And today, quacks take advantage of the back-to-nature movement, capitalizing on the notion that there ought to be simple, natural solutions to almost any problem. Some current target areas for such promotions include:

ARTHRITIS

Over 30 million Americans suffer from arthritis, and the nature of the disease makes it fertile ground for fraud. And because symptoms may come and go, or the disease may be in remission for several years, arthritis sufferers may actually believe at least temporarily, that they' ve been cured by a quack remedy.

Before you add to the $2 billion spent annually on quack arthritis cures, remember that although medical science offers effective treatments, it has found no cure for arthritis. The list of fraudulent "miracle cures" for the disease ranges from snake venom to lemon juice, from the harmless milk of vaccinated cows to the dangerous use of steroids.

More dangerous and costly arthritis treatments are offered by legitimate-looking clinics, often located outside the United States. While some clinics may offer effective treatment, many prescribe untested diets or drugs that either offer no cure or cause additional health problems. Beware of arthritis clinics that offer cures. It is important to remember that pain relief and inflammation treatments are not the same. A product that advertises relief for the minor pains of arthritis does not necessarily treat inflammation.

FITNESS

Quacks know that people would like to have the benefits of exercise without actually exercising. So recent years have brought all sorts of "body toning" devices, such as electrical muscle stimulators. Such devices are, of course, worthless for "body toning" and can even be dangerous, but they're advertised and sold as substitutes for exercising.

WEIGHT LOSS

These schemes are probably the most popular form of quackery. Millions seek a painless way to win the battle of the bulge. Since proper diet and exercise take constant discipline and work, quack claims are especially appealing and, to some, worth a try. Since being overweight can lead to a number of health problems, including high blood pressure, heart attack, stroke, and kidney disease, quick weight-loss products that don't work aren't worth a try when they can harm you if only by not helping you.

The fact is that you cannot lose weight if you do not cut down on the amount of food you eat or exercise more to burn up calories. Products that trim you and tone you effortlessly haven't been invented yet.

CANCER

Here quack cures are probably the cruelest and most expensive. Seriously ill people may spend thousands of dollars on phony treatments. Often, quack cancer treatment clinics are set up just outside the United States, so that they're beyond the jurisdiction of U.S. authorities. Before you request admission to any cancer clinic, talk to your doctor about it, and check out the credentials and reputation of the practitioners.

QUACK ADVERTISING - THE NEED FOR HEALTHY SKEPTICISM

Many people believe that advertising is screened by a government agency and that, therefore, all claims about health products in advertising must be truthful. This is not the case, except for drugs and medical devices that require pre-market approval by FDA. There is no federal, state, or local government agency that approves or verifies claims in advertisements before they are printed. Law enforcement authorities can take action only after the advertisements have appeared.

This holds for claims of a "money-back guarantee". Many quacks are fly-by-night operators who do not respond to refund demands.

BEWARE OF TESTIMONIALS THAT SOUND TOO FANTASTIC TO BE TRUE

Health fraud promoters are fond of using testimonials from "satisfied users". Legitimate testimonials may be useful, but beware of testimonials reporting incredible results, especially when no medical support for the claim is offered. This is particularly important since "satisfied users" may, in some cases, have experienced the sugar pill, or "placebo" effect. The placebo effect occurs when people, believing they have been given a real medicine, experience a benefit from it. It is the power of suggestion at work, which is helpful to the person who experiences it, but doesn't mean that other people will have the same belief in the product.

YOU CAN PROTECT YOURSELF

Apply the "it-sounds-too-good-to-be-true" test to ads for health products by watching for these common characteristics of quackery:

  • A quick and painless cure.
  • A 'special', 'secret', 'ancient', or 'foreign' formula, available only through the mail and only from one supplier.
  • Testimonials or case histories from satisfied users as the only proof that the product works.
  • A single product effective for a wide variety of ailments.
  • A scientific 'breakthrough' or 'miracle cure' that has been held back or overlooked by the medical community.

INVEST YOUR TIME BEFORE YOU INVEST YOUR MONEY

Before buying a suspect product or treatment, check with one or more of the following:

  • Your doctor, pharmacist, or other health professional.
  • The Better Business Bureau
  • Government agencies such as state's Attorney General, Federal Trade Commission, Food and Drug Administration, or Postmaster.

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LIST OF HAZARDOUS HERBS

Here is a list of nine herbs that the FDA says are related to serious adverse reactions or possible dangers:

  1. Chaparral. Can cause liver inflammation. Has been promoted as a "blood purifier", cancer cure and acne treatment.
  2. Comfrey. At least seven cases of liver complications have been reported in users. Comfrey stimulates cell growth and is used for wound healing when taken externally. Toxic to the liver when taken internally.
  3. Yohimbe. Produces adverse reactions when consumed with certain foods - liver, cheese and red wine. Is valued as an aphrodisiac.
  4. Lobelia. High doses can suppress breathing, cause sweating, speed the heart, lower blood pressure and even lead to coma or death. The source of lobeline, an ingredient in some over-the-counter smoking deterrents.
  5. Germander. Linked to liver inflammation, including one death. Used as a weight-loss aid.
  6. Willow bark. Contains salicylates, like aspirin, which could cause stomach irritation or Reye syndrome. Is promoted as an 'aspirin-free' pain reliever, but no adverse effects have been reported.
  7. Jin Bu Huan. An overdose can result in severe sedation requiring medical treatment, and liver inflammation. Is marketed as a sedative and pain reliever.
  8. Stephania and Magnolia. Have been implicated in severe kidney injury to at least 48 women.
  9. Ma huang. Associated with high blood pressure, rapid heart rate, nerve damage, muscle injury, psychosis, stroke and memory loss. Used for weight control and enhanced energy and to treat asthma and hay fever. Contains pseudoephedrine, the active ingredient in decongestants such as Sudafed.

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I'VE BEEN DIAGNOSED. NOW WHAT ?

If you're diagnosed with hepatitis C, get informed. Check with your local support group. (If in doubt, call 1-800- 652-HEPC)

Make sure that you:

  • Get re-tested to confirm the diagnosis.
  • Get vaccinated against hepatitis A and B; ask about the pneumonia vaccine.
  • Are sent to a specialist.
  • Get copies of all tests.

The specialist should:

  • Order an ultrasound yearly, if your family doctor didn't.
  • Order an alphafetoprotein test yearly.
  • Order a liver biopsy. (This is usually done by needle aspiration, but there are other options if there is a bleeding problem, for example.)
  • Discuss treatment options with you. (Get a second or even a third opinion if you don't agree.)

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Juanita's Burritos (6 servings)

  1. 3 onions, minced
  2. 1 t. oregano
  3. 1 1/2 t. chili powder
  4. 3/4 t. paprika
  5. 1/2 t.+ salsa
  6. 1/2 t. ground cumin
  7. 3 C. cooked split peas
  8. 6 large flour tortillas
  9. 3 T. crumbled feta cheese
  10. 6 tomatoes, cut in quarters
  11. juice from one lime
  12. 2 minced green onions

Grease a frying pan. Add ingredients 1-6. Fry over low heat 5 or 6 minutes and add peas. Divide the mix amongst the tortillas, add cheese, and roll up. Clean and re-grease frying pan, and fry the burritos, seam down, for 2 minutes. Blend tomatoes and lime juice. Turn burritos over, pour tomato mix over them, and cook covered over low heat for 4 minutes.

Top with green onions, and serve hot.

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Message from the National Office

We continue to be incredibly busy in the National Office. Calls are flooding in from people wondering about compensation details. I wish we had more definitive news. Hopefully, by the time you read this there will have been an announcement.

On March 4, our President, Jeremy Beaty wrote letters to each provincial minister of health and to federal ministers Alan Rock, Paul Martin and Anne McLellan.

In his letter, Jeremy states: "We would emphasise that this man-made tragedy has killed Canadians and ruined families...We are most concerned that the governments of Canada are now planning to compensate only victims who were harmed between 1986 and 1990. We are writing to ask you to re-evaluate your position on this issue. To proceed would be a grave injustice to the other victims and would generate substantial new claims against the Red Cross and the federal and provincial governments. Not only would it do an injustice to Krever's stated position and recommendations, but it would be a government decision made on a narrow legal interpretation that is based on fault but does not admit fault...The 1986 date has been established by class action lawyers who have selected a safe date to win their case on behalf of their clients. There is no other validity to this date...The governments of Canada have a choice to make: to deal with compensation in a cold, litigious manner as an out-of-court settlement, or to heed Justice Krever and act based on compassion and social justice. The history books will describe your actions in resolving this greatest man-made tragedy in Canadian history."

Jeremy also offered, in his letter, to meet with any of the ministers to discuss this concern, but to date has received no response. He and I have also been busy co-ordinating media coverage of the ongoing compensation debate. You probably have seen or heard either one of us or any one of our Board members on local or national media, commenting on the latest government move or delay.

The latest class action was filed on March 10 in Toronto; it is another option for those transfused before 1986 or after 1990 in any province, except BC which has a class action for this time frame. The numbers to call for more information are:

Transfused in BC:

David Klein 1-(800)-468-4466 or 1- (604) 874-7171

Transfused in all other provinces:

David Harvey (416) 597-4060

Until next time,

Tim McClemont, Executive Director

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CLASS ACTION SUITS

BRITISH COLUMBIA

Camp Church and Associates
Sharon Matthews / Kim Graham
4th Floor, Randall Building
Vancouver, B.C. V6B 1Z5
1-800-689-2322

Grant Kovacs Norell
Bruce Lemer
Grosvenor Building
930-1040 West Georgia Street
Vancouver, BC, V6E 4H1
Phone: (604) 609-6699
Fax: (604) 609-6688

Before August 1, 1986

Klein Lyons
David A Klein
805 West Broadway, Suite 500
Vancouver, B.C. V5Z 1K1
(604)874-7171
(604)874-7180 (FAX)

also:

Dempster, Dermody, Riley and Buntain
William Dermody
4 Hughson Street South, 2nd Floor
Hamilton, Ontario L8N 3Z1
(905) 572- 6688

The toll free number to get you in touch with the
Hepatitis C Counsel is 1-(800)-229-LEAD (5323).

TRACEBACK PROCEDURES

This information is for anyone who has received
blood transfusions in Canada, if they wish to find
out if their donors were Hep C positive.

TRACEBACK INQUIRIES

Contact: Dr. Lisa Jeppesen, Dr. P Doyle, or Glenda
The Canadian Red Cross Society
4750 Oak Street
Vancouver, BC, V6H 2N9
1-888-332-5663 (local 207)

-------------------------

Class Action/ Compensation

If you would like more information about the
class action/compensation, you can contact:

Tricia Plunkett. Tel. (250) 479-5369
e-mail:
plunket@islandnet.com

Meetings will be set up so that we can share our
experiences dealing with lawyers, the results of our
own investigations, and so that we can decide what
is in our own best interest as far as legal steps to take.

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